Thursday, October 27, 2005

It's official!

Yes, I got to talk to the 'dizziness specialist' today, and he concluded that I have Menier's disease. If you saw my previous post, you will know that is what I had concluded on my own. It is a relief to have my own diagnosis confirmed. Doctors speak, sometimes sneeringly, of 'self-diagnosis' as a problem with patients who have too much information and not enough knowledge. That is even more the case in Japan, where a patient daring to tell a doctor what he thinks is wrong with himself is treated like an alien. I would say that the biggest problem with Meniere's is that it is idiopathic, meaning that they have to eliminate absolutely everything else before doctors are willing to go out on a limb and diagnose it. So they tell patients 'yes, you have a problem, but we are not willing to put a name to it.' That causes stress, which is actually one of the triggers of Meniere's. A bit of a self-fulfilling prophecy.
So, now that I know what is wrong with me, what is the next course of action? According to Dr. Dizzy, there is none: No medicine will cure it, and there is nothing to really be done about it. He said something like 'you just got born with the wrong body.' There is actually a $3,000 machine being sold in the U.S. (sorry, being prescribed by licensed physicians). It sends 500 Hz pulsewaves into the inner ear, which somehow help the problem. It is not too bad right now, so maybe I won't consider that, but it is nice to know that some doctors somewhere--definitely not here!--are not content to say 'being dizzy is your destiny'. I hope they find a treatment before my next bout...

2 Comments:

Blogger Andy said...

$3000 for a 60HZ pulse generator ... make one from a hearing aid ... look up some circuits on the net .. what have you got to lose my friend? $3000 to save !!!

9:18 PM  
Anonymous tokyospinning said...

Yeah, generally I am a complete geek and would agree. And in fact, am tempted to go out looking. There is the small matter, however, of surgically inserting a tube through the eardrum which, despite my prowess in operating on my own hangnails, I don't feel really competent to try...

9:58 PM  

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